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Figures & data
Table 1 Overview of Papers About the Danish Healthcare System and Selected Population-Based Registries
Box 1 Biobank Research in Denmark: Advantages and Possibilities
Figure 1 Danish biobanks can be linked to hundreds of population-based registries and databases by the civil registration number.
Notes: The Bio- and Genome Bank Denmark includes following individual biobanks: the Danish Cancer Biobank, the Danish Rheumatologic Biobank, the Danish Blood Donor Biobank, the Danish Diabetes Biobank, the Danish Dermatology Biobank, the Danish Screening Biobank, the Danish Pathology Data Bank and Genetics Biobank, the Danish Genetics Biobank, the Danish Research and Whole-Genome Sequencing Biobank, and the Danish COVID-19 Biobank. The time period of coverage for registries is: The Medical Birth Registry 1973 -; The National Patient Registry 1977 -; The Psychiatric Central Research Registry 1969 -; The National Prescription Registry 1995 -; The Registry of Cause of Death 1970 -; The Cancer Registry 1943 -; and the social and demographic registers of Statistics Denmark 1982-. Further, Denmark has ~85 clinical quality databases and numerous disease and procedure registries that typically contain detailed clinical information on selected patient groups or procedures. Information from general practitioners includes recording of services in the Danish National Health Service Registry 1990 -. Yet, the level of details is limited in this registry. Prescriptions issued by general practitioners are recorded in the National Prescription Registry (if redeemed by the patient). Lab tests send from general practitioners to hospital laboratories are recorded in the Laboratory Information Systems.
Table 2 Overview of Biological Samples in the Danish National Biobank
Figure 2 Organization of the Bio- and Genome Bank Denmark.
Notes: Source is with permission from Bio- and Genome Bank Denmark. Available from: https://www.regioner.dk/rbgben/about/organization. The figure shows how the Bio- and Genome Bank Denmark is organized with a Steering Committee, a national secretariat and Scientific Advisory Boards for present and future biobanks. XXX denotes that more and more biobanks are included in the structure.
Abbreviation: RBGB, The Bio- and Genome Bank Denmark.
Table 3 Number of Unique Biological Samples Included in the Bio- and Genome Bank Denmark from 2016 to 2021
Table 4 Overview of Fourteen Biobanks (Population, Period of Enrollment, Data Types, and a Study Example). Detailed Information About Data is Presented in Later Tables
Table 5 Number of Unique Biological Samples in the Danish National Birth Cohort
Table 6 Overview of Interviews and Questionnaires in the Danish National Birth Cohort
Table 7 Overview of Questionnaires, Interviews, or Clinical Examinations in the Danish Twin Registry and Biobank
Table 8 Overview of Biobank Material and Molecular Data in the Danish Twin Registry and Biobank
Table 9 Overview of Data in Diet, Cancer, and Health
Table 10 Overview of Data in Diet, Cancer, and Health – Next Generations
Table 11 Overview of Data in the Danish Centre for Strategic Research in Type 2 Diabetes Cohort and the Danish Diabetes Database for Adults
Table 12 Overview of Data in the Vejle Diabetes Biobank
Table 13 Overview of Data in the Copenhagen City Heart Study and the Copenhagen General Population Study
Table 14 Number of Unique Biological Samples Included in the Danish Cancer Biobank from 2016 to 2020
Table 15 Overview of Data in the Danish Rheumatologic Biobank and DANBIO
Table 16 Number of Unique Biological Samples Included the Danish Rheumatologic Biobank from 2015 to 2020
Table 17 Overview of Questionnaires in the Danish Blood Donor Study
Box 2 Variables in the Danish National Pathology Registry
Table 18 Where to Apply for Data