Danish Childhood Cancer Registry

Figures & data

Table 1 Quality indicators of childhood cancer in Denmark

Number of patients treated according to and reported to an international protocol

5-year relapse-free survival

5-year overall survival

Number of patients dying from complications due to treatment

Days from diagnosis to start of treatment

Number of patients developing a secondary cancer

Number of BSI-related deaths within 30 days after the diagnosis of BSI

Number of BSIs in which the microorganisms are sensitive to the appliedfirst-line antimicrobial chemotherapy

Number of BSIs per 1,000 CVC-days

Number of premature removals of CVC caused by infectious complications

Abbreviations: BSI, blood stream infection; CVC, central venous catheter.

Table 2 Main variables in the Danish Childhood Cancer Registry (DCCR)

Cancer data

CPR

Tumor type

Extent of disease (localization of metastases)

Date of diagnosis

Date of start of therapy

Type of therapy (operation, chemotherapy, irradiation, observation)

Treatment protocol

Reporting of clinical data according to international protocol

Response to initial therapy

Date of cessation of therapy

Relapse (date, localization, treatment and outcome of relapse)

Yearly follow-up

Disease status:

Alive in complete remission

Alive with active disease

Development of secondary malignancy

Death: date and cause of death

Tunneled central venous catheters (t-CVCs)

Type of t-CVC

Date of insertion of t-CVC

Date of removal of t-CVC

Cause for removal of t-CVC

Bacteremia

Date of bacteremia

Focus for the bacteremia

Microbiological agents

Bacterial drug sensitivity

Antibiotic treatment, type, and length

Result of antibacterial therapy

Abbreviation: CPR, cardiopulmonary resuscitation.

Figure 1 Yearly cancer incidence in children in Denmark 1985–2014.