Figures & data
Table 1 Responders’ (n=136) demographics by gender, age, ethnicity, education, and tumor type
Figure 1 Responses to questions relating to initial diagnosis.
Notes: Questions from survey: (A) When were you first diagnosed with a brain tumor? (B) How were you first diagnosed? (C) How many times did you visit the hospital/your GP with the above symptoms before being referred for a scan? (D) How long did it take between being referred for a scan and this taking place? (E) Who was your diagnosis given by? (F) Where were you informed of your diagnosis?
Table 2 Mechanism of initial presentation for each tumor type
Figure 2 Number of presenting symptoms of each responder.
Table 3 Satisfaction with different areas of the clinical pathway
Figure 3 Information provided following discharge from treatment.
Figure 4 Differences in support received and what was felt would be beneficial.
Figure 5 Responses to questions relating to care plans and involvement in research.
Notes: Questions from survey: (A) Following discharge from treatment, did you receive a personalized care plan to suit to your needs? (B) Have you participated in a study or clinical trial related to your tumor diagnosis? (C) Was involvement in research discussed with you at any point? (D) Would you be willing to be included in a patient register to inform you about future studies you may be eligible for?
Table 4 Willingness to be involved in research
Table 5 Areas for further development