Psychosocial Impact and Disease Management in Patients with Congenital Factor VII Deficiency

Figures & data

Table 1 Demographic Characteristics

Characteristic	Participants (N=45)
Survey participants, n (%)
Adult patients	25 (56)
Caregivers of children	20 (44)
Age, mean (range), years
Adults	33 (18–67)
Children	11 (5–17)
Gender, %
Female	56
Male	44
Race, %
White	44
Black	31
Other	25
Employment status, %
Employed full-time	53
Self-employed	13
Employed part-time	13
Not currently employed	11
Full-time student	4
Retired	4
Residential setting, %
Suburban	44
Rural	29
Urban	27

Figure 1 Distribution of ISTH-BAT scores.

Abbreviations: BAT, Bleeding Assessment Tool; ISTH, International Society on Thrombosis and Haemostasis.

Figure 2 Treatments used to control recent bleeds (categories were not mutually exclusive).

Abbreviation: rFVIIa, recombinant activated factor VII.

Figure 3 Average frequency of bleeds over the past year reported by all respondents.

Figure 4 Proportion of patients satisfied with the level of support they receive.