A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families

Figures & data

Table 1 Outline of the Interviews

Projects	Ask the Patient Questions	Ask the Family Questions
1	What is your biggest psychological feeling at the moment	What is the greatest psychological feeling since caring for a sick relative
2	How would you most like to be supported and assisted by health care professionals	What kind of support and assistance would you and your patients most like to receive from your healthcare professionals
3	What kind of medical services do you think you need most	What do you think a human service looks like
4	How to evaluate the caring behaviour of medical staff	How to evaluate the caring behaviour of medical staff
6	Tell us about the warmest thing and the least satisfying thing	Tell us about the warmest thing and the least satisfying thing

Table 2 Characteristic of Stroke Patients

Serial Number	Gender	Age	Academic Qualifications	Occupation	Place of Residence	Religious Beliefs	Type of Disease	Number of Hospitalizations	Number of Days in Hospital	Payment of Hospital Fees Mode
A1	F	3	2	1	1	None	Cerebral infarction	4 (current year)	6	1
A2	F	3	3	1	1	None	Cerebral infarction	1	7	1
A3	F	2	2	3	2	Christianity	Cerebral infarction	1	20	2
A4	M	2	2	3	2	None	Cerebral infarction	1	27	3
A5	M	2	2	3	1	None	Cerebral infarction	1	4	1
A6	F	2	2	3	2	None	Cerebral haemorrhage	4	35	3
A7	F	2	2	4	1	None	Cerebral haemorrhage	1	5	1
A8	M	2	1	3	2	None	Cerebral infarction	1	8	3
A9	M	3	2	1	2	None	Cerebral infarction	1	5	3
A10	F	3	1	5	1	None	Cerebral infarction	3	8	1
A11	M	3	2	5	1	None	Cerebral infarction	1	13	1
A12	F	2	1	4	2	None	Cerebral infarction	1	10	1
A13	F	3	3	1	1	None	Cerebral infarction	1	5	1
A14	M	2	2	5	2	None	Cerebral infarction	1	15	1
A15	F	3	2	1	1	Buddhism	Cerebral haemorrhage	2	8	1
A16	F	2	2	2	2	None	Cerebral haemorrhage	2	9	3
A17	F	3	2	1	1	Buddhism	Cerebral infarction	1	4	1
A18	M	1	2	5	2	None	Cerebral haemorrhage	1	9	2
A19	M	3	2	4	1	Christianity	Cerebral haemorrhage	1	11	2
A20	M	3	3	1	2	None	Cerebral haemorrhage	1	16	1
A21	F	3	2	1	1	Buddhism	Cerebral haemorrhage	1	7	1

Notes: Description: Gender: M= male, F= female. Age (1= under 35 years old, 2=36–59 years old, 3= over 60 years old); Education: 1= primary school and below, 2= secondary school; 3= University or above; Place of residence: 1= city, 2= town; Occupation: 1= retired, 2= enterprise employee, 3= worker, 4= businessman, 5= other; Payment method:1= medical insurance; 2= self-pay, 3= other.

Table 3 Characteristic of Relatives

Serial Number	Gender	Age	Academic Qualifications	Occupation	Relationship with Patients	Place of Residence	Religious Beliefs	Length of Care (Days)
B1	M	1	3	2	2	1	None	15
B2	M	2	2	3	1	2	None	150
B3	F	3	2	1	1	1	None	20
B4	M	1	2	3	2	2	None	3
B5	M	2	2	4	2	2	None	14
B6	F	2	2	5	1	1	None	14
B7	M	3	2	3	1	2	None	7
B8	M	2	3	4	2	2	None	5840
B9	M	3	2	5	2	2	None	31
B10	M	1	2	4	3	1	None	5
B11	F	2	2	3	3	2	None	20
B12	M	3	1	4	1	2	Buddhism	20
B13	M	1	2	3	2	1	None	20
B14	F	1	3	5	2	2	None	6
B15	M	1	2	5	3	2	None	10
B16	M	2	3	2	2	1	None	7
B17	F	1	2	5	2	2	None	13
B18	F	1	2	5	2	2	None	9
B19	F	2	1	2	1	2	None	12
B20	F	3	1	5	1	2	None	18
B21	F	2	2	4	1	1	Buddhism	20

Notes: Description: Gender: M= male, F= female. Age (1= under 35 years old, 2=36–59 years old, 3= over 60 years old); Education: 1= primary school and below, 2= secondary school; 3= University or above; Place of residence: 1= city, 2= town; Occupation: 1= retired, 2= enterprise employee, 3= worker, 4= businessman, 5= other; Relationship with patients: 1= husband and wife, 2= children, 3= other family members.

Table 4 Subjects, Codes, Meaningful Units

Key Themes	Sub-Theme	Coding	Meaningful Units
The need for physiological care		No water ingress, big mouth	A2, A10
		Feeling awful without a shower	A4
		Fear of pulling on the bed	A10, A12
		No change of clothes for 4 days	A11
		Can eat and talk	B12
		Vocal	B15
The need for safe care	Professional Conduct	Technology is valued	A20
		Checking	A19
		Expertise	B8
		Blood clots	A18
	Prompt response	The needle was swollen for two days and no one attended to it	A1
		Come in immediately if you have a problem	A15
		No nurse after the injection	B3, B19
The need for emotional care	Service Awareness	Smiles and attitude	a1, a2, a6, a18, b5, b14
		Proactive	A3, A7, A10, A16, A21
	Positive incentives	A look of affirmation and words of encouragement	a1, a2, a3, a8, b1, b12, b13
	Empathy	Indifference	A2
		Reassure me not to be anxious	A9
		No regard for feelings	A18
	Effective communication	Why did not you tell me about the danger?	A1
		No clarification	A11
		The explanation is particularly detailed	A20
	Providing a platform for exchange	Patients are able to communicate and empathise with each other	A8, A15
		Like-minded	A20
	Personalised care	Therapeutic touch	B6, B11
		Psychotherapy	B9
The need to respect rights		Equality and information	A2, A5
		Privacy	A13, A15
		Self Introduction	A16
The need for rehabilitative care	Rehabilitation Programme	Develop a rehabilitation plan	a13, a19, b13, b16, b17
		Rehabilitation programme to be completed daily	A20
	Professional guidance	Overall awareness	A1, B5, B7
		Rehabilitation guidance	A5, A19
		Lit. turn to any doctor in a crisis (idiom); fig. to try anyone or anything in a crisis	A6, A12
	Rehab configuration	Rehabilitation videos	A7, A11
		Rehabilitation equipment	A13, A20
	Extended Service	Return visit	A1, A14
The need for family care	Physical and mental support	Need for care	B1
		Companion bed required	B6
		Professional explanation	B14
	Caregiving guidance	Do not know how to deal with it	B16
		What to do for care	B18
		It’s hard to care for patients without knowing	B20