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Original Research

The eXtraordinarY Kids Clinic: an interdisciplinary model of care for children and adolescents with sex chromosome aneuploidy

Nicole Tartaglia1 Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA;2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USACorrespondence[email protected]

,

Susan Howell1 Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA;2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

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Rebecca Wilson2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

,

Jennifer Janusz1 Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA;2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

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Richard Boada1 Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA;2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

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Sydney Martin2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

,

Jacqueline B Frazier2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

,

Michelle Pfeiffer2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

,

Karen Regan2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

,

Sarah McSwegin2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

&

Philip Zeitler1 Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA;2 Child Development Unit, Children’s Hospital Colorado, Aurora, CO, USA

Figures & data

Table 1 Neurodevelopmental and psychological risks in SCA conditions

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Table 2 Medical and physical features of SCA conditions

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Figure 1 Diagram of eXtraordinarY Kids Clinic model.

Abbreviations: SCA, sex chromosome aneuploidy; ADHD, attention deficit hyperactivity disorder; CVS, chorionic villus sampling; DBPediatrics, Developmental-Behavioral Pediatrics.

Figure 1 Diagram of eXtraordinarY Kids Clinic model.

Figure 2 Overall satisfaction scores after a clinic visit (n=164).

Figure 2 Overall satisfaction scores after a clinic visit (n=164).

Table 3 Parent reported benefits following team evaluationTable Footnote*

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