Patient-reported benefits from patient organization magazines and Internet-based peer support in Ménière’s disease

Figures & data

Table 1 Structured questions used in the survey

How useful do you consider Ménière patient magazines (appearing four times in a year) from Finnish Ménière’s Federation?

How much help could a recently disabled (less than 1 year) Ménière disease person obtain from an Internet-based peer-support program?

How much help could a chronically disabled (1 year or more) Ménière disease person obtain from an Internet-based peer-support program?

After peer support, do you understand your Ménière disease in a different way or in a new light?

Could a peer support program support your collaboration with your doctor in a therapeutic aspect?

If some other disease would disable you, would you like to have a program similar to the peer support for Ménière disease?

Figure 1 Usefulness of the content found in patient magazines.

Note: The graph is based on 222 replies from 131 respondents to an open-ended question.
Abbreviation: FMF, Finnish Ménière’s Federation.

Table 2 Usefulness and applicability of the patient magazine (PM) and virtual Internet-based peer support (iPS) program

Questions	Do not know (%)	No (%)	Moderately (%)	Much (%)	Very much (%)
How useful do you consider the PM appearing four times in a year?	3	1	7	38	49
How much help did you get from the iPS (recent MD)?	24	1	7	32	36
How much help did you get from the iPS (chronic MD)?	32	2	15	29	22
Do you understand your MD better having followed the iPS?	37	2	16	27	19

Abbreviation: MD, Ménière’s disease.

Figure 2 Usefulness of the content of the Internet-based peer support program on acute and chronic Ménière’s disease patients.

Note: The graph is based on 159 replies for acute disease and 99 replies for chronic disease from 93 respondents to an open-ended question.
Abbreviations: FMF, Finnish Ménière’s Federation; MD, Ménière’s disease.