“I don’t know exactly what you’re referring to”: the challenge of values elicitation in decision making for implantable cardioverter-defibrillators

Figures & data

Table 1 Values clarification exercise in the patient decision aid¹⁹

Values clarification questions	Not important			Very important
How important is it to you to lower your chances of a sudden cardiac death?	1	2	3	4	5
How important is it to you to have the peace of mind that a dangerous fast heart rhythm could be corrected?	1	2	3	4	5
How important is it to you to avoid complications from an ICD?	1	2	3	4	5
How important is it for you to avoid shocks from an ICD?	1	2	3	4	5
How important is it for you to die naturally when your time comes? (ie, without life-prolonging technology)	1	2	3	4	5
How important is it at this time in your life to choose medical treatments that could improve how you feel physically? (like breathing, feeling tired, walking, or climbing stairs)	1	2	3	4	5

Abbreviation: ICD, implantable cardioverter-defibrillator.

Table 2 Patient characteristics

Participant	Age, years	Sex	PDA received	ICD decision
Received the decision aid with a values clarification exercise
E	79	Female	Yes	Implanted
I	77	Male	Yes	Implanted
K	68	Female	Yes	Implanted
L	61	Male	Yes	Implanted
M	69	Male	Yes	Implanted
O	64	Male	Yes	Implanted
P	85	Male	Yes	Implanted
G	49	Male	Yes	Declined
N	55	Male	Yes	Declined
H	63	Male	Yes	Deferred
Received usual care with no explicit values clarification exercise
B	70	Female	No	Implanted
D	87	Male	No	Implanted
F	78	Female	No	Implanted
A	47	Male	No	Declined
C	75	Female	No	Deferred
J	61	Female	No	Deferred

Abbreviations: ICD, implantable cardioverter-defibrillator; PDA, patient decision aid.

CarrollSLStaceyDMcGillionMEvaluating the feasibility of conducting a trial using a patient decision aid in implantable cardio-verter defibrillator candidates: a randomized controlled feasibility trialPilot Feasibility Stud201734929201388

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