Patients’ perceptions of the impact of ulcerative colitis on social and professional life: results from the UC-LIFE survey of outpatient clinics in Spain

Figures & data

Figure 1 Patients’ responses to statements about the impact of ulcerative colitis on their social lives.

Note: numbers within the figure are percentages.
Abbreviation: WC, water closet.

Figure 2 Percentages of men and women who responded “frequently” or “mostly/always” to statements about the impact of ulcerative colitis on their social lives.

Abbreviations: ns, not significant; WC, water closet.

Table 1 Proportiona of patients who responded “frequently” or “mostly/always” to questions about their social lives

Have you ever been in any of the following situations?	Total	Controlled symptoms	Symptoms not impairing everyday life	Symptoms impairing everyday life	P-value
I take into account whether a WC is close when I plan my leisure activities	211 (51.3)	57 (32.0)	56 (52.3)	80 (83.3)	,0.001
My illness influences the kind of activities I do in my leisure time	109 (27.9)	21 (12.6)	24 (23.1)	58 (61.7)	,0.001
I have stopped participating in recreational or professional activities due to my illness	80 (20.6)	14 (8.4)	17 (16.4)	46 (49.4)	,0.001
My illness has influenced the kind of friendships I have	15 (3.8)	4 (2.4)	3 (2.8)	6 (6.4)	0.213
I have lost touch with friends due to my illness	5 (1.3)	2 (1.2)	1 (0.9)	2 (2.1)	0.746
I have separated from a partner due to my illness	3 (0.8)	1 (0.6)	0 (0.0)	2 (2.2)	0.502

Notes:

a Data shown are number (%) of patients. Because some patients did not respond to the perceived symptomatic burden of UC question, the sum of the different options does not always match the total number.

Abbreviations: ns, not significant; UC, ulcerative colitis; WC, water closet.

Table 2 Proportion (%) of patients who responded “yes” to questions about childcarea

Characteristic	Has UC influenced your decision to have children?		If you have children, does UC influence your ability to take care of them?
	Yes	P-value	Yes	P-value
Gender		<0.001		<0.001
Men	7.4		30.0
Women	28.4		52.0
Age		<0.001		0.013
≤38 years	28.4		48.9
>38–52 years	18.6		47.2
>52 years	0.3		26.7
UC duration		0.860		0.190
0–5 years	18.9		34.8
>5–12 years	20.8		48.1
>12 years	17.6		37.0
Perceived symptom burden		0.009		<0.001
Controlled	15.2		22.4
Not impairing everyday life	11.9		36.6
Impairing everyday life	30.7		65.2

Notes: Data shown are percentages of patients.

a Excluding patients who responded that these questions did not apply to them (n=126 and n=147, respectively).

Abbreviation: UC, ulcerative colitis.

Figure 3 Percentages of patients who responded “yes” to statements about the impact of ulcerative colitis on professional and academic life (stratified by perception of symptomatic burden).

Abbreviations: ns, not significant; UC, ulcerative colitis.

Figure 4 Percentages of patients who responded “yes” to statements about the impact of ulcerative colitis on professional and academic life (stratified by age [tertiles]).

Abbreviations: ns, not significant; UC, ulcerative colitis.

Table 3 Proportiona of patients who responded “yes” to questions about professional or academic factorsb

Have you ever been in any of the following situations?	Total	Men	Women	P-value
I have had sick leave due to my UC	214 (63.7)	121 (65.4)	93 (61.6)	0.469
My illness has influenced the kind of job I perform	162 (47.0)	88 (47.8)	74 (47.0)	0.729
I have rejected a job due to my UC	60 (20.3)	26 (16.7)	34 (24.3)	0.104
I have had problems with my studies due to my UC	44 (19.4)	16 (14.7)	28 (23.7)	0.319
I have lost a job due to my UC	43 (14.7)	26 (16.6)	17 (12.6)	0.340
I have had to leave my studies due to my UC	12 (5.5)	4 (3.8)	8 (6.9)	0.319

Notes:

a Data shown are number (%) of patients.

b Excluding patients who responded that these questions did not apply to them.

Abbreviation: UC, ulcerative colitis.