Listening to those on the frontline: service users’ experiences of London tuberculosis services

Figures & data

Table 1 Participants’ socio-demographic and risk characteristics

Interview	Sector	Gender	Age	Ethnic group	Risk group
1	SW	Male	28	Pakistani	Compliant user, immigrant
2	SW	Male	40s	Black African (Ugandan)	Compliant user, immigrant, HIV coinfected
3	NW	Male	50s	Black African (Ghanaian)	Prison user, immigrant, HIV coinfected (inpatient)
4	NE	Female	70s	White British	Compliant user, other conditions (stroke, meningitis)
5	NE	Male	35	European (mixed parentage)	IV drug user, immigrant, HIV coinfected
6	NW	Female	20	Black African (Somali)	Mental health issues, immigrant
7	NE	Male	30	UK born, Black British	TB single diagnosis
8	NE	Male	32	UK born, Asian British	TB single diagnosis
9	SE	Male	27	UK born, Black British	TB single diagnosis
10	SE	Male	25	UK born, Vietnamese	TB single diagnosis

Table 2 Main recommendations

These should be addressed, facilitated, or provided

Awareness, education, and training for GPs and other health professionals to recognize TB symptoms and offer prompt diagnosis Managed accommodation for difficult to treat patients, ie, small, dedicated facilities run by TB professionals for those most at risk with treatment non-compliance Safe housing and secure hostel accommodation supported by TB staff Promotion and awareness of incentives to service users, eg, cash, food, and travel costs for promoting adherence TB services teams’ collaborative ways of working with non-NHS and voluntary organizations to raise awareness and provide information Addressing information needs of service users regarding TB understanding, drug adherence, drug side effects, coping with emotional, and social consequences Service users’ experiences informing the development of integrated care pathways to contribute to improvements in service quality