The Development of a New Questionnaire to Measure the Burden of Immunoglobulin Treatment in Patients with Primary Immunodeficiencies: The IgBoT-35

Georgina L Jones1 Department of Psychology, School of Social Sciences, Leeds Beckett University, Leeds, UKCorrespondence[email protected]
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Kate Williams2 PAREXEL International, London, UK

https://orcid.org/0000-0003-4874-0334 View further author information

Mark Edmondson-Jones2 PAREXEL International, London, UKView further author information

Johan Prevot3 International Patient Organisation for Primary Immunodeficiencies, Downderry, CornwallPL11 3LY, UKView further author information

Jose Drabwell3 International Patient Organisation for Primary Immunodeficiencies, Downderry, CornwallPL11 3LY, UKView further author information

Leire Solis3 International Patient Organisation for Primary Immunodeficiencies, Downderry, CornwallPL11 3LY, UKView further author information

Anna Shrimpton4 Clinical Immunology and Allergy Unit, Northern General Hospital, Sheffield Teaching Hospitals and NHS Foundation Trust, Sheffield, UKView further author information

Nizar Mahlaoui5 French National Reference Center for Primary Immune Deficiencies (CEREDIH), Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux De Paris, Paris, France;6 Pediatric Immuno-Haematology and Rheumatology Unit, Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux De Paris, Paris, France;7 IPOPI Medical Advisory Board, Chair

https://orcid.org/0000-0002-0030-8094 View further author information

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The Development of a New Questionnaire to Measure the Burden of Immunoglobulin Treatment in Patients with Primary Immunodeficiencies: The IgBoT-35

Table 1 Patient Characteristics by Ig Treatment Group

Table 2 Clinical Characteristics by Treatment Route

Table 3 Domain Structure, Item Pool and Reliability of the Domains Generated from the Exploratory Factor Analysis

Table 4 Raw Data of the IgBoT-35 Items

Table 5 Mean Domain Scores for the IgBoT-35 for the Total Patient Sample

Table 6 Domain Summary Statistics by Administration Route (IVIG/SCIG)

Table 7 Domain Summary Statistics by Gender (Female/Male)

Table 8 Domain Summary Statistics by Age Group (<60/≥60)

Table 9 IgBoT-35 Domain Values by Location (Home versus Hospital Treatment)

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The Development of a New Questionnaire to Measure the Burden of Immunoglobulin Treatment in Patients with Primary Immunodeficiencies: The IgBoT-35

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Table 1 Patient Characteristics by Ig Treatment Group

Table 2 Clinical Characteristics by Treatment Route

Table 3 Domain Structure, Item Pool and Reliability of the Domains Generated from the Exploratory Factor Analysis

Table 4 Raw Data of the IgBoT-35 Items

Table 5 Mean Domain Scores for the IgBoT-35 for the Total Patient Sample

Table 6 Domain Summary Statistics by Administration Route (IVIG/SCIG)

Table 7 Domain Summary Statistics by Gender (Female/Male)

Table 8 Domain Summary Statistics by Age Group (<60/≥60)

Table 9 IgBoT-35 Domain Values by Location (Home versus Hospital Treatment)

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