Development of Japanese Versions of the Control Preferences Scale and Information Needs Questionnaire: Role of Decision-Making and Information Needs for Japanese Breast Cancer Patients

Figures & data

Table 1 Participant Characteristics in the Study Sample (N = 49)

	Mean	SD
Age	51.9	9.0
	n	%
Metastasis
Yes	13	26.5
No	36	73.5
Current therapy
Endocrine therapy	16	32.7
Chemotherapy	33	67.3
Type of therapy
Adjuvant	36	73.5
Palliative	13	26.5
History of treatment
None	16	32.7
Chemotherapy	24	49.0
Endocrine therapy	3	6.1
Both	6	12.2
Marital status
Married	36	73.5
Unmarried	10	20.4
Other	3	6.1
Educational level
High	11	22.4
Middle	38	77.6
Employment status
Full-time	15	30.6
Part-time	13	26.5
Housekeeper	20	40.8
Unemployed or retired	1	2.0
Household
Living with a partner	35	71.4
Living alone	10	20.4
Other	4	8.2

Abbreviation: SD, standard deviation.

Table 2 Results of the CPS Assessment of Patients’ Actual Roles (N = 48)

	First Patient Evaluation
	n (%)	Active	Collaborative	Passive
Second patient evaluation	Active	8 (16.7)	2 (4.2)	1 (2.1)
	Collaborative	0 (0)	4 (8.3)	1 (2.1)
	Passive	5 (10.4)	1 (2.1)	26 (54.2)
	Total	13 (27.1)	7 (14.6)	28 (58.3)

Notes: The abscissa shows the first CPS assessment of patients, and the ordinate shows the result of re-measurement.

Table 3 Degrees of Agreement Between Patients’ and Researchers’ Evaluations

	CPS		Charles’ Model
	Researcher 1	Researcher 2	Researcher 3	Researcher 4
Kappa coefficient (95% CI)	0.35 (0.14–0.55)	0.37 (0.19–0.55)	0.43 (0.22–0.63)	0.41 (0.31–0.92)
Weighed kappa statistic (95% CI)	0.33 (0.10–0.57)	0.44 (0.25–0.63)	0.40 (0.17–0.63)	0.39 (0.19–0.59)
Kendall tau coefficient (95% CI)	0.32 (0.05–0.58)	0.50 (0.30–0.70)	0.42 (0.17–0.67)	0.40 (0.18–0.63)

Table 4 Degrees of Agreement Between Patients’ Actual and Preferred Decision-Making Roles

	Actual Role
	n (%)	Active	Collaborative	Passive	Total
	Active	6 (12.5)	2 (4.2)	4 (8.3)	12 (25.0)
Preferred role	Collaborative	5 (10.4)	3 (6.3)	9 (18.8)	17 (35.4)
	Passive	2 (4.2)	2 (4.2)	15 (31.3)	19 (39.6)
	Total	13 (27.1)	7 (14.6)	28 (58.3)

Figure 1 Information needs of breast cancer patients (N = 49).