Documenting Patient Data in Psoriasis Clinical Practice—Patient Focus Groups Supporting Psoriasis Experts’ Decision-making

Figures & data

Figure 1 Overview of the structure of analyses.

Note: *Do not know.

Figure 2 Example of the categorization of a quotation.

Abbreviation: V, variable.

Table 1 Topic and Subject Areas, Main and Subcategories

Topic Area	Subject Area	Main and Subcategories
Overall topic	In the focus groups discussed variables	Main categories: indicate whether a stated reason was given for or against the documentation of a variable
		Subcategories: stated reasons for or against the documentation of a variable
Personal data	Insurance status Previous and current occupation Marital status Previous pregnancies Current family planning Family history of psoriasis Gender Age Educational status Height Weight Body mass index Waist and hip circumference/ratio Smoking behavior Drinking behavior (alcohol) Nutrition	Reasons for a documentation of variables of personal data; V (variables)=if reason was stated for more than one variable
		V have an impact on psoriasis (n=27) V have an impact on choosing therapy (n=26) V for knowing about hereditary risks (n=5) V can help identifying statistical characteristics of psoriasis (n=5) V are necessary for physicians/patients (n=4) Age can indicate different periods and handling of the disease by different age groups (n=4) Previous pregnancies can lead to changes/beginning/ending of psoriasis (n=2) Current and previous occupation for knowing about impairments at work (n=1)
		Reasons against a documentation of variables of personal data; V (variables)=if reason was stated for more than one variable
		V have no impact on psoriasis (n=22) V have no impact on therapy (n=9) Insurance status is not necessary for physicians and/or patients (n=3) Documentation of drinking and smoking behavior can lead to hasty conclusions by physicians (n=2) Documentation of educational status might be against norms and values (n=1) Marital status has no added value (n=1)
Anamnesis data	First appearance of symptoms Initial diagnosis Comorbidity Comedication Previous rehabilitative measures due to psoriasis Current rehabilitative measures due to psoriasis Previous inpatient stays due to psoriasis Current inpatient stays due to psoriasis Previous inability to work due to psoriasis Current inability to work due to psoriasis Previous and current therapies Clinical form of psoriasis	Reasons for a documentation of variables of anamnesis data; V (variables)=if reason was stated for more than one variable
		V to document experiences about the effectiveness of measurements (n=20) V have an impact on medication (n=5) V to manage drug–drug interactions (n=4) V to recognize individual disease burden (n=4) Documentation of the first appearance of symptoms and initial diagnosis can lead to better integrated care (n=2) Documentation of the first appearance of symptoms and initial diagnosis can indicate different handling of the disease (n=2) Documentation of the first appearance of symptoms and initial diagnosis can overcome insufficient memory (n=2) Documentation of the first appearance of symptoms for indicating disease over time (n=2) Documenting previous and current therapies to be able to exclude diagnoses (n=1) Documenting clinical form of psoriasis to indicate interactions between different clinical forms of psoriasis (n=1)
		Reasons against a documentation of variables of anamnesis data; V (variables)=if reason was stated for more than one variable
		V have questionable relevance (n=5) Documenting previous rehabilitative measures due to psoriasis can lead to hasty conclusions by physicians (n=1)
Clinical data	Body surface area and severity Adverse events in previous and current therapies Laboratory results All clinical data (including 1−3, nail psoriasis, psoriasis arthritis)	Reasons for a documentation of variables of clinical data; V (variables)=if reason was stated for more than one variable
		V to document experiences with therapy/side effects (n=4) V have an impact on medication (n=4) Documenting body surface area and severity for capturing quality and quantity of psoriasis (n=1) Documenting laboratory results over time for a better estimation of results (n=2) Documenting all clinical data leads to knowledge about the state of psoriasis (n=1)
		Reasons against a documentation of variables of clinical data
		Body surface area and severity could be inadequately recorded (n=2)
Patient-reported data	Burden of disease/severity Itch Pain Symptoms Compliance Quality of life and health status Depression and anxiety Psychological burden Adverse events Treatment goals Treatment benefit Own treatment costs Burden of therapy Time requirements for treatment External help Satisfaction with treatment Patient-reported outcomes	Reasons for a documentation of variables of patient-reported data; V (variables)=if reason was stated for more than one variable
		V indicate individual burden (n=8) V allow subjectivity (n=5) Quality of life and everyday life are influenced by psoriasis (n=3) Documenting psychological burden, depression, and anxiety to recognize need for action (n=3) Documenting own treatment costs to find efficient treatment opportunities for patients (n=3) Documenting patient’s goals for purposeful physician–patient consultation (n=2) Documenting compliance is relevant for physicians (n=1) Compliance is related to other aspects (n=1) Stating side effects is not subjective (n=1) Patient satisfaction indicates successful therapy (n=1)
		Reasons against a documentation of variables of patient-reported data; V (variables)=if reason was stated for more than one variable
		V are subjective (n=6) Patient-reported data could be stated intentionally false (n=1) Patient satisfaction has no impact on medication (n=1)
Other data	Documentation of previous and current patient education Physicians/physician groups involved in treatment	Reasons for a documentation of variables of other data
		Lack of information, such as possible course or forms of disease (n=6) Enabling possible actions (n=2) Integrated care/exchange of information (n=6) Concerning different physician groups (n=1)
		Reasons against a documentation of variables of personal data
		Individual reaction on medication (n=2) No capacity for physicians (n=2) Hasty conclusions by physicians (n=2)