Figures & data
Table 1 Participants
Figure 2 This body map is in Dutch, as this is the native language of the participants in this study. The participant who made this body map wrote texts on the body map to explain the icons and images that were chosen. These texts include, for example, explanations about Positive effects of treatment: “I am sick less often”; Impact of treatment on the body: “Fortunately, I have no side effects from the treatment”; emotions: “I enjoy going to school, it gives me pleasure”; impact of treatment on meaningful activities: “Because of my treatment, I sometimes miss school”; coping strategies: ‘I discuss with my doctor that I still have a lot of different treatments; social support: “I always look forward to see my friends”; and future dreams: “My dream is to get less infections”. On the bottom right, questions are written down which the participant wished to ask the care provider after making the body map: “How can I reach him in between appointments”.
![Figure 2 This body map is in Dutch, as this is the native language of the participants in this study. The participant who made this body map wrote texts on the body map to explain the icons and images that were chosen. These texts include, for example, explanations about Positive effects of treatment: “I am sick less often”; Impact of treatment on the body: “Fortunately, I have no side effects from the treatment”; emotions: “I enjoy going to school, it gives me pleasure”; impact of treatment on meaningful activities: “Because of my treatment, I sometimes miss school”; coping strategies: ‘I discuss with my doctor that I still have a lot of different treatments; social support: “I always look forward to see my friends”; and future dreams: “My dream is to get less infections”. On the bottom right, questions are written down which the participant wished to ask the care provider after making the body map: “How can I reach him in between appointments”.](/cms/asset/8c73b756-97b4-4ca6-b36b-3c3fbc8994e5/dppa_a_12155847_f0002_c.jpg)