Association between patients with dementia and high caregiving burden for caregivers from a medical center in Taiwan

Figures & data

Table 1 Variable information of patients with dementia

Variables		Frequency	Percentage	Data type
CDR of the care recipient	Very mild dementia	21	22.6	0
	Mild dementia	53	57.0	1
	Moderate dementia	14	15.1	2
	Severe dementia	5	5.3	3
Age of the caregiver	<40 years	5	5.3	0
	40–49 years	10	10.8	1
	50–59 years	36	38.7	2
	60–69 years	21	22.6	3
	≥70 years	21	22.6	4
Care recipient relation (who are you caring for?)	Spouse	28	30.1	0
	Parent	52	55.9	1
	Other relatives	12	12.9	2
	Other nonrelatives	1	1.1	3
Type of primary care	Sole caregiver	43	46.3	0
	Shared caregiving	35	37.6	1
	Caregiving by female foreign labor	11	11.8	2
	Others	4	4.3	3
Frequency of care	1–2 days per week	3	3.2	0
	3–5 days per week	4	4.3	1
	≥6 days per week	86	92.5	2
Help of key activities (multiple choice)	Physical condition and/or activities of daily living	14	15.1	0
		79	84.9	1
	Navigating in and through the healthcare system or rehabilitation	17	18.3	0
		76	81.7	1
	Accompany	11	11.8	0
		82	88.2	1
Caregiving burden	Little or no burden	0	0	0
	Moderate burden	64	68.8	1
	Severe burden	29	31.2	2
Type of dementia	Alzheimer’s disease	53	57.0	0
	Vascular dementia	20	21.5	1
	Frontotemporal degeneration	9	9.7	2
	Dementia with Lewy bodies	2	2.2	3
	Parkinson’s disease	3	3.2	4
	Mixed dementia	3	3.2	5
	Others	3	3.2	6
Gender of the care recipient	Female	60	64.5	0
	Male	33	35.5	1
Age of the care recipient	<65 years	4	4.3	0
	65–69 years	3	3.2	1
	70–74 years	6	6.5	2
	75–79 years	19	20.4	3
	80–84 years	31	33.3	4
	85–89 years	20	21.5	5
	≥90 years	10	10.8	6
Help with activities of daily living	No	58	62.4	0
	Yes	35	37.6	1

Abbreviation: CDR, clinical dementia rating.

Table 2 Self-test of memory clinic caregiver’s stress

Questions	Never	Rarely	Sometimes	Quite frequently
	0	1	2	3
1. Do you feel uncomfortable when you need to take care of him/her while you are ill?
2. Do you feel exhausted because of taking care of him/her?
3. How burdened do you feel physically in caring for him/her?
4. Are you affected by his/her emotion?
5. Do you feel sleep disturbance because he/she cannot sleep at night?
6. Do you feel your health has suffered because of your involvement with him/her?
7. Do you feel strained when you are around him/her?
8. Do you feel mentally painful when you are around him/her?
9. Do you feel angry when you are around him/her?
10. Do you feel that your social life has suffered because you are caring for him/her?
11. Do you feel uncomfortable about having friends over because of him/her?
12. Do you feel he/she is dependent on you?
13. Do you feel that you do not have enough money to take care of him/her?
14. Do you feel that your income has been affected because of taking care of him/her?

Table 3 Results generated by Apriori algorithm when the caregiving burden is severe

Rule no	Antecedent	No of the cases in the database	Support (%)	Confidence (%)	Lift
1	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
2	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
3	Age of the care recipient = 75–79 years Gender = male Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
4	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
5	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
6	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
7	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
8	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
9	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
10	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
11	Age of the care recipient = 75–79 years Gender = male Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
12	Age of the care recipient = 75–79 years Gender = male Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
13	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation	5	5.376	100	3.207
14	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
15	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
16	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
17	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
18	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
19	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
20	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
21	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
22	Age of the care recipient = 75–79 years Gender = male Help with activities of daily living = no Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
23	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	5	5.376	100	3.207
24	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Frequency of care = 6 days or more per week	5	5.376	100	3.207
25	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
26	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
27	Age of the care recipient = 75–79 years Gender = male Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
28	Age of the care recipient = 75–79 years Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany Frequency of care = 6 days or more per week	5	5.376	100	3.207
29	Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = physical condition and/or activities of daily living	10	10.753	90	2.886
30	Gender = male Care recipient relation = spouse Type of primary care = sole caregiver Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = accompany	10	10.753	90	2.886
31	Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = physical condition and/or activities of daily living Frequency of care = 6 days or more per week	10	10.753	90	2.886
32	Gender = male Care recipient relation = spouse Help with activities of daily living = no Help of key activities = navigating in and through the healthcare system or rehabilitation Help of key activities = physical condition and/or activities of daily living Help of key activities = accompany Frequency of care = 6 days or more per week	10	10.753	90	2.886