Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs

Abstract

Background Raising a child with an autism spectrum disorder (ASD) implies significant stress levels and changes in family functioning. Most studies deal with parental difficulties, whereas those focusing on parental self-reported support needs related to ASD are fewer, especially in France. Our objective was to explore in a French sample the needs of parents of children with ASD so as to provide recommendations for support.

Method Parents were interviewed (N = 162, including 84 controls), and content analysis was performed from parental responses.

Results Six dimensions of need emerged: material, information, guidance, daily management, relational support, and emotional support. Needs priorities were different for parents with a child with ASD involving the transmission of knowledge and skills as well as emotional and relational support.

Conclusions This study highlights the need to develop support programs focused on the needs of the parents that reflect educational, behavioural, and psychological dimensions.

Keywords:

• autism spectrum disorder (ASD)
• parenting needs
• parent support
• therapeutic education