A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant”

Figures & data

Table 1. Participant characteristics. Sample characteristics.

	N
Ethnicity
Asian or Asian British	6
Black, Black British, African, or Caribbean	2
Birth order
Youngest	1
Middle	2
Eldest	5
Disability Diagnosis*
Cerebral Palsy	2
Autism Spectrum Disorder	4
Dyslexia	2
Dyspraxia	1
Epilepsy	6
Gaze Palsy	1
Hemiplegia	1
Malonic Aciduria	2
Optic Atrophy	1
Profound and Multiple Learning Disabilities	1
Severe Learning Difficulties	4
Parental Country of Origin
Dominica	1
Hong Kong	1
India	3
Jamaica	1
Kenya	1
Nigeria	1
Pakistan	2
Uganda	1

*Many participants had siblings diagnosed with multiple disabilities.

Table 2. Summary of key themes and sub-themes.

Cross-cutting Theme	Major Themes	Sub-themes
Cross-cultural clashes	Constant challenges	Being a caregiver Family expectations Lack of recognition by society
	Negative consequences on self and relationships	Psychological wellbeing Constraints on personal life Strained relationships
	Coping strategies to overcome difficulties	Individual resilience Always place sibling first Social support builds confidence

Data availability statement

Due to the nature of this research, participants of this study did not agree for their data to be shared publicly, so supporting data are not available.