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Articles

Barriers to Accessing Quality Health Care for Cancer Patients: A Survey of Members of the Association of Oncology Social Work

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Pages 38-52 | Received 15 Sep 2008, Accepted 20 Mar 2009, Published online: 12 Jan 2010
 

Abstract

The present article reports data from a cross-sectional survey of members of the Association of Oncology Social Work (AOSW) completed in May 2006. The purpose of the survey was to gather information on AOSW members' practice roles, the clients they serve, and their views on barriers cancer patients face in obtaining quality cancer care. The survey instrument was a self-administered 18-page survey disseminated online and by U.S. mail to members who did not provide e-mail addresses. The response rate to the survey was 62.3% (622/999). Reported barriers to quality cancer care are presented here in three categories: health system, social/environmental, and individual-level barriers. The majority of respondents reported health system barriers, specifically inadequate health insurance, as the major barrier to accessing quality health care for cancer patients. Among social/environmental barriers, inability to pay for treatment-related expenses was the major barrier. Among individual-level barriers, patients' fears and distress were the major barriers. The conclusions from this survey point to the critical role of oncology social workers in assisting cancer patients in overcoming the barriers to quality care and achieving optimum quality of life.

On behalf of the Association of Oncology Social Workers, the authors express appreciation to The Leukemia and Lymphoma Society for their partial support of the member survey.

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