The Perceptions of Persons Living with Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome About Their Experiences in Regaining Productive Occupations: A Delphi Study

ABSTRACT

Research supports the importance of occupational role engagement for people living with human immunodeficiency virus and acquired immunodeficiency syndrome. This qualitative Delphi study obtained the perspectives of participants in a community-based program for persons living with human immunodeficiency virus/acquired immunodeficiency syndrome about their resumption of productive occupations. Data analysis revealed four themes of self-worth, finances, health, and social systems. Within each theme, motivators, obstacles, and supports were identified. These findings can be used to guide occupational therapy practitioners working with persons living with human immunodeficiency virus/acquired immunodeficiency syndrome to facilitate supports, surmount barriers, and empower persons living with human immunodeficiency virus/acquired immunodeficiency syndrome to resume and retain desired and meaningful occupational roles.

KEYWORDS:

• Delphi method
• HIV/AIDS
• motivation
• occupational therapy
• volunteer work

Acknowledgments

This study would not have been possible without the assistance of Sister Ruth Neely, CRNP and Jodilyn Coleman, MA of the STHC. We thank them for screening and recruiting participants and collecting the three rounds of data. Although we cannot personally thank our study’s anonymous participants, we want to publicly express our appreciation for their willingness to share their perspectives regarding their resumption of productive occupations. We also thank Christina Gavalas, University of Scranton work study employee, for her production assistance.