Young Children's Participation and Environment Measure: Swedish Cultural Adaptation

ABSTRACT

Aim: To culturally adapt and evaluate the psychometric properties of the Young Children's Participation and Environment Measure (YC-PEM) for use by caregivers of Swedish children with and without disabilities, aged 2–5 years. Methods: Thirteen cognitive interviews and two focus groups with caregivers of children with and without disabilities were conducted to evaluate the cultural relevance of YC-PEM content for use in Sweden. Per participant feedback, a revised version of the Swedish YC-PEM was created and pilot tested with caregivers of children with disabilities (n = 11) and children with typical development (n = 22). Results: User feedback informed content revisions to 7% of items. Internal consistency estimates of the Swedish YC-PEM pilot version were acceptable and ranged from .70 to .92 for all but two of the YC-PEM scales. Mean percentage agreement between raters ranged from 47% to 93% across YC-PEM scales for inter-rater, and 44% to 86% for test-retest. One of twelve YC-PEM scales revealed significant group differences between young children with and without disabilities. Conclusions: This study contributes preliminary evidence for the use of some scales within a culturally adapted YC-PEM in Sweden. Further validation with larger samples will allow for parametric testing to evaluate its psychometric properties.

KEYWORDS:

• Children
• cultural adaptation
• measure
• participation
• pilot testing
• young children's participation and environment measure

Declaration of Interest

The authors report no conflicts of interest.

About the Authors

Frida Marie Åström is a Ph.D. student in Disability Research. Mary Khetani Sc.D., OTR/L, is an Assistant Professor. Anna Karin Axelsson has a Ph.D. in Disability Research, RPT.

Additional information

Funding

Vetenskapsrådet(10.13039/501100004359, 319-2013-8784 (dnr))