Working with Parents of Exceptional Children: The Need for More Careful Thought and More Positive Action

ABSTRACT

The majority of studies relating to families of handicapped children emphasise the negative emotions of the parents, particularly initial shock followed by guilt, chronic sorrow and anxiety. Rarely have these studies relied on the parents' assessments of their own reactions. As a consequence of this, there is little recognition in the relevant literature of either the wide range of parental reaction or the successful and satisfying adjustments which many parents make. A second important limitation in these studies is the absence of a theoretical framework either to test the occasional contradictions that can occur or arising out of the findings themselves.

As an alternative approach, it is suggested that a theoretical position could be developed from the concept of need recognising that the needs of the parents are distinct from those of their handicapped child, although usually consistent with them. An analysis of the research literature (Burden, 1981) has already identified five areas of need–the need for information, support, advice, access to resources and opportunities for social interaction.

It is recognised that the concept of need is a necessary but insufficient basis for an adequate theory. The notion of support coinciding with the parents' reaction to transitions in the child's life is offered as an additional factor in the family's successful adjustment. Three other variables are cited as affecting parental adjustment–individual differences in resistance to stress; the extent and nature of the child's disability and the tolerance of the community to that particular disability. In developing this theoretical framework, reference is made to some of the practical problems associated with the implementation of professional services.