Meeting the long-term needs of adults with acquired brain injury through community-based programming

Abstract

Primary objective: To determine the effectiveness of a community-based programme for meeting the long-term needs of survivors of acquired brain injury (ABI).

Methods and procedures: Qualitative and quantitative methods were employed. Surveys were administered to practicing clinicians to validate the needs found in the literature that should be provided by such programmes. Surveys administered to participants in the programme assessed how effective they perceived it to be in meeting those needs. Focus group discussion provided support to the survey findings.

Main outcomes and results: Survey responses indicate differences among members, caregivers and student interns participating in the programme on issues of emotional support, social support, recreation and transportation. Focus group participants agree that emotional, social and cognitive needs are the most important needs of the members. Overall, these member needs were found to be met by the programme. The needs that participants found to remain unmet include social support for caregivers, transportation issues and community education.

Conclusions: This community-based, posts-rehabilitation programme for survivors of ABI appears to effectively meet many long-term needs. Investigations that examine the role of similar programming to meet caregiver needs, educate the public and provide transportation for participants are required.

• Community-based rehabilitation
• head injury
• outcome
• quality of life