A scoping review of the needs of children and young people with acquired brain injuries and their families

ABSTRACT

Understanding the needs of children and young people (CYP) with acquired brain injuries (ABI) is essential in delivering pathways of care and providing effective rehabilitation.

Aim: To identify relevant literature and key themes relating to the nature and extent of needs (met, unmet or unrecognized) of CYP with ABI and their families.

Method: Scoping review. Sixteen electronic bibliographic databases were searched using terms relating to children, brain injury and need. Papers were screened against eligibility criteria by two independent reviewers. No date limits were applied. Data were extracted by the lead author regarding the needs of CYP with ABI and their families and thematic analysis conducted to identify the key themes. Methodological quality was not assessed.

Results: A total of 28 articles were identified including three systematic reviews, one scoping review, two practice recommendation articles, and 22 original research studies. Participants included CYP with ABI, parents, siblings, and professionals. Four key themes were identified; CYP-related impairment needs, support needs, return to school and long-term aftercare.

Conclusion: CYP with ABI and their families report extensive needs, many of which are often unmet or unrecognized by those supporting the CYP. Needs transcend the health, social care, and education domains.

KEYWORDS:

• Acquired brain injury
• traumatic brain injury
• rehabilitation
• education
• care
• children
• young people
• adolescents
• paediatric
• needs

Acknowledgments

This scoping review was conducted as part of an HEEM/NIHR funded Clinical Silver Scholar award for the lead author. The authors would like to thank the NIHR Research Design Service in the East Midlands for their assistance in developing the search strategy and Katie Powers for assisting in the screening process.

Conflicts of Interest

The authors declare no conflicts of interest.

Additional information

Funding

This work was supported by the National Institute for Health Research [HEEM Clinical Silver Scholar]