Delivery of cystic fibrosis psychosocial care across developmental stages

ABSTRACT

Cystic fibrosis (CF) is an inherited, life-limiting chronic health condition that impacts many organ systems including the lungs, pancreas, liver, intestines, and reproductive organs. Given the various organ systems impacted, treatments can be complex, burdensome, and time consuming. In addition, the stress and emotional impact of CF on caregivers as well as patients is significant. This paper describes delivery of psychosocial care across developmental stages in the largest pediatric CF center in the country. The focus will be on goals of care as well as assessment and intervention strategies. Furthermore, clinical informatics and next steps also will be discussed.

KEYWORDS:

• Cystic fibrosis
• multidisciplinary teams
• pediatric psychology

Disclosure statement

We have no known conflict of interest to disclose.

Additional information

Funding

The author(s) reported there is no funding associated with the work featured in this article.