The psychosocial impact of bone marrow transplantation: Research and clinical social work perspectives

Abstract

Bone marrow transplantation (BMT) has been under-studied from a social work perspective. This article reports on a cross-institutional study into the psychological and social preparation for bone marrow transplantation. The data presented was collected from all consenting BMT recipients treated over a preceding three year period at four teaching hospitals. The key findings included demographic issues which had an influence on post transplant adjustment, lack of rehabilitation services, ongoing physical incapacity, disappointment at the slow rate of recovery, lack of counselling resources, difficulties in the way information was presented, difficulties with the transition from hospital to home and a perceived lack of interest by hospital staff of the needs of carers. These results were presented to the social workers in each BMT unit. They considered the extent to which the findings matched their clinical experience, and the relevance of the research to their social work practice. This discussion suggested the need for social work involvement on a number of levels beyond case-work, particularly in promoting organisational change.