Development of “down the road”: An interactive toolkit about driving cessation for dementia caregivers

ABSTRACT

Concerns about safe driving practices in individuals with dementia often fall to caregivers, who are frequently faced with the difficult task of initiating the conversation about driving and driving cessation with their loved ones. This is a topic that can be a very emotional and sensitive for older adults. Several print-based resources are currently available to caregivers; however, emerging research suggests that disseminating information through applied theater, a genre of theater typically based on research that addresses a social issue, may be more effective in changing attitudes than these traditional print-based methods. Applied theater touches upon the emotional complexities involved in decision-making about driving, deepening a viewer’s experience with the content. This work used research obtained from focus groups and individual interviews with 17 (eight informal and nine formal) dementia caregivers as a foundation for the development of a toolkit called Down the Road, which consists of an applied theater production about driving safety called No Particular Place to Go (in DVD-format), an accompanying viewer guidebook, and supplemental information cards. The content of Down the Road centers around eight main themes identified by dementia caregivers, including (1) the importance of driving, (2) the assessment process, (3) information about refresher courses and driving schools, (4) risk factors and warning signs, (5) starting the conversation, (6) dealing with resistance, (7) the need for support, and (8) alternative transportation options. Down the Road incorporates the expressed needs of dementia caregivers to translate knowledge into an effective, research-based toolkit that can provide caregivers with an interactive resource for use individually or in facilitated groups.