Self-Management Support Needs of Patients with Chronic Diseases in a South African Township: A Qualitative Study

ABSTRACT

Despite the need for chronic disease self-management strategies in developing countries, few studies have aimed to contextually adapt programs; yet culture has a direct impact on the way people view themselves and their environment. This study aimed to explore the knowledge, attitudes, and self-management needs and practices of patients with chronic diseases. Four patient focus groups (n = 32), 2 patient interviews, group observations, and key informant interviews (n = 12) were conducted. Five themes emerged: health-system and service-provision challenges, healthcare provider attitudes and behavior, adherence challenges related to medication and lifestyle changes, patients’ personal and clinic experiences and self-management tool preferences. The findings provide a window of opportunity for the development of contextually adapted self-management programs for community health nursing in developing countries.

Keywords:

• Chronic diseases
• self-management support
• patient needs and challenges
• community health nursing
• South Africa

Funding

This work was supported by the 2012-2013 doctoral fellowships for development cooperation of the Université catholique de Louvain and a research assistant grant from the University of Pretoria.

Additional information

Funding

This work was supported by the 2012-2013 doctoral fellowships for development cooperation of the Université catholique de Louvain and a research assistant grant from the University of Pretoria.