Welcome back survey: exploring concerns impacting HIV care engagement and retention

ABSTRACT

The current study describes the development of a short pre-clinic survey that helped multidiscipline providers to elicit patient perspective on barriers to HIV primary care. The survey was piloted with 318 patients returning to care after being lost to care for at least 12 months. Reasons for breaks in care were dependent on age, gender, and race. Concerns about confidentiality in care were more commonly reported by African-American, Latino, and younger patients, while concerns relating to acceptance of diagnosis and side effects were greater for women, African-American, and Latino participants. Further, Intimate Partner Violence (IPV) and transportation were greater concerns for women and younger patients in the sample.

KEYWORDS:

• Barriers to care
• lost to care
• urban HIV primary care

Acknowledgments

The contents of this paper are solely the responsibility of the authors and do not necessarily represent the official views of the government.

Disclosure statement

No potential conflict of interest was reported by the authors.

Notes

1. We excluded patients who reported transitioning care back to the CORE Center due to change in insurance.

Additional information

Funding

This paper was made possible in part through support afforded from the US Department of Health and Human Services, Health Resources and Services Administration (HRSA), HIV/AIDS Bureau's Special Projects of National Significance Program [H97HA15144].