Review of U.S. registries for psoriasis

Abstract

Background: Patient registries are databases comprised of standardized clinical data for a specific population of patients with a particular disease or medical condition. Information from patient registries allows clinicians to assess long-lasting outcomes in patients with a specific disease, such as psoriasis.

Objective: Our primary objective was to identify available psoriasis registries in the United States (U.S.) and evaluate the application of patient registries compared to clinical trials.

Methods: We searched Google, the Registry of Patient Registries, Orphanet and ClinicalTrials.gov to create a list of U.S. psoriasis registries. We also performed a literature review on the application of psoriasis registries using PubMed.

Results: We identified 6 psoriasis patient registries in the United States.

Conclusions: Patient registries are frequently used for psoriasis in the U.S. and provide important information about the safety, efficacy and long-term effects of systemic therapies.

Keywords:

• Psoriasis
• patient registries
• clinical trials
• post-marketing surveillance

Disclosure statement

Ms. Amin and Mr. No report no potential conflicts of interest. Dr. Wu is an investigator/consultant for AbbVie, Amgen, Celgene, Dermira, Eli Lilly, Janssen, LEO Pharma, Novartis, Regeneron, and Valeant Pharmaceuticals.

Additional information

Funding

This article has no funding source.