Prognostication in post-stroke aphasia: Perspectives of people with aphasia on receiving information about recovery

ABSTRACT

Many people with aphasia (language impairment post-stroke) want to know their prognosis for recovery, yet current understanding of their experience of receiving prognoses is limited. Such insight is necessary to inform clinical practice in formulating and delivering aphasia prognoses, especially given the psycho-emotional distress and secondary adverse effects on recovery associated with conversations about prognosis. We sought an in-depth understanding of the perspectives of people with aphasia in relation to receiving prognoses post-stroke, with the aim of informing an evidence-based approach to aphasia prognostication in clinical practice. Semi-structured interviews, facilitated by communication support strategies, were conducted one-to-one with eight people with aphasia (ranging from mild to very severe) 3–12 months post-stroke. Reflexive thematic analysis was used to analyse the qualitative data, yielding two over-arching themes: (1) How would you know without knowing me?; (2) I need to know, but I don’t want to know. Our findings illustrate issues of mistrust within the patient–clinician relationship, and complex emotions relating to hope and post-stroke adjustment. The present insight into the lived experience of receiving aphasia prognoses highlights the need for focused consideration of personal definitions of normalcy, measures for fostering trust, and the role of prognostic uncertainty.

KEYWORDS:

• Aphasia
• Stroke recovery
• Rehabilitation
• Prognostication
• Clinical communication

Acknowledgements

We thank the PAPAR project research team for recruitment and assisting in the arrangement of data collection.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

This work was supported by the National Health and Medical Research Council under Grant NHMRC Project #1104194, and the Australian Government under a Research Training Program (RTP) scholarship awarded to Bonnie Cheng. Sarah J. Wallace is supported by the National Health and Medical Research Council under an Emerging Leadership Investigator Grant (APP1175821).