Abstract
Purpose. This study: (i) Identified the availability of scientifically-based information on the internet regarding stroke rehabilitation intended for those who have experienced a stroke and their families; and, (ii) assessed the usability of a newly created website on stroke rehabilitation for laypersons, StrokEngine-Family.
Method. First, an extensive systematic search was undertaken to identify and appraise existing stroke rehabilitation websites. Seventeen websites met specific inclusion/exclusion criteria. Although some addressed stroke rehabilitation interventions in layperson language, none discussed the numerous treatment options based on scientifically based information. Thus, StrokEngine-Family was developed and its usability assessed with individuals who had experienced a stroke and family members.
Results. Seven respondents aged 43 – 68 years participated in the pilot testing of the newly developed StrokEngine-Family. All except one indicated overall satisfaction with the website: The one respondent rated it as somewhat user-friendly mainly for aesthetic reasons including the need for darker colors and larger font. In addition, respondents requested specific information regarding emotional support and local community referrals to this type of support. Based on the feedback, minor changes were made including a greater use of short phrases, bulleted notations and the addition of a depression module.
Conclusions. The systematic review provided support for the development of StrokEngine-Family. In pilot testing, StrokEngine-Family was easy to use and valuable in content.