Making a new-patient headache education session more patient-centered: what participants want to know

Abstract

Purpose: To describe the new-patient Education Session provided by the Calgary Headache Assessment and Management Program, analyze patient evaluations, and generate potential patient-centered improvements based on themes in patient feedback.

Materials and Methods: Between 2008 and 2012, 1873 new patients attended the Education Session, and 913 evaluations were completed. Session objectives ratings were analyzed. Open-ended questions regarding most- and least-helpful components and suggestions for improvement were examined using thematic analysis.

Results: Eighty-seven percent of respondents indicated they would recommend the session to others with headache. Median objectives ratings ranged from 9.0–10.0 out of 10 and were stable over time. Most-helpful themes included medication, types of headache, our program’s multi-faceted management approach, medication overuse, triggers, and not feeling alone. Most respondents left the least-useful and suggestions sections blank or commented “nothing” or “not applicable”. Least-useful themes included migraine overemphasis, insufficient or excessive medication content, participant over-disclosure, and lack of practical trigger management strategies.

Conclusion: Most attendees found the Education Session useful. Those who did not provided valuable input that will allow us to modify the content. Our findings may benefit other headache programs seeking to implement or improve patient education programing.

Implications for Rehabilitation

• Headache is a common and debilitating condition.

• Education is an important part of headache treatment, and has been associated with decreases in headache frequency, intensity, and disability, as well as increases in self-efficacy.

• A new-patient Education Session is a practical and inexpensive way to provide evidence-based medical and behavioral headache information.

• Quantitative and qualitative analysis of patient evaluations can help gauge relevance and direct content changes.

Keywords:

• Patient education
• headache education
• migraine
• patient-centered care
• headache self-management

Acknowledgements

The authors wish to thank Dr. Farnaz Amoozegar, Andrea Bezuidenhout, Dr. Lara Cooke, Dr. Mary Roduta Roberts, Dr. Cary Brown, and Suzanne Basiuk for their assistance and support.

Disclosure statement

No potential conflict of interest was reported by the authors..