Novel approaches to measuring community integration in adults with cerebral palsy

Abstract

Purpose: Rehabilitation goals often focus on increasing community integration for adults with disabilities and are measured by objective assessments. Research methods have lagged behind in capturing current conceptualizations of community integration as a multidimensional construct that incorporates participation, social supports, and feelings of belonging in the community. This paper addresses this challenge by describing a multi-method approach to assessing community integration for adults with cerebral palsy.

Methods: Measures include standardized questionnaires, qualitative methods, measures of function and physical activity, and geospatial measures using Geographic Information System mapping and Global Positioning System tracking. These objective and subjective data are used to determine where adults spend time and are most active, and which activities and social connections are associated with feeling integrated into the community.

Results: Two case examples highlight the importance of using a multi-method approach to assess community integration for adults with cerebral palsy. Results of objective clinical measures were comparable among case examples; however, actual experiences of feeling connected to the community were vastly different.

Conclusions: Multiple measures are required to capture the complexity of community integration. Relying solely on objective measures may not provide a complete picture of community integration.

IMPLICATIONS FOR REHABILITATION

• Community integration is a complex construct that incorporates participation, socialization, and feelings of belonging in the community.

• New methods and measures are needed to assess the many aspects of community integration in adults with disabilities.

• A multi-method approach is recommended to provide a richer characterization of community integration in individuals with disabilities.

• A combination of quantitative and qualitative measures addressing the physical, social and psychological aspects of community integration should be used.

Keywords:

• Community integration
• adults
• Global Positioning System (GPS)
• Geographic Information Systems (GIS)
• mapping
• cerebral palsy

Acknowledgements

We would like to thank Kelly Jordan, Laura Cizek, and Denise Brookes for assistance with data collection, and Adam Mann and Emily Ruggles for assistance with map building.

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Funding

This work was supported by the Cerebral Palsy Alliance [PG3214]. There was no involvement from the funder in the study design, collection, analysis, or interpretation of date, or the writing of this report.