Great expectations? A qualitative study of health professionals’ perspectives on breaking bad news about rehabilitation potential after traumatic brain injury or spinal injury

Abstract

Background: Neurorehabilitation units play an important role in facilitating recovery for those with complex needs following a neurological event. National guidance highlights the importance of providing patients and their families with information and fostering realistic expectations. This may involve the breaking of bad news. The aim of this study is to explore health professionals’ perspectives on breaking bad news in the neurorehabilitation setting.

Method: 15 health professionals (physiotherapists, occupational therapists, nurses, speech therapists, psychologists and doctors) working at a 24 bedded neurorehabilitation unit in a National Health Service acute trust in England were recruited. A qualitative study was conducted using patient vignettes to facilitate discussions during semi-structured interviews and a focus group. The results were analyzed using thematic analysis.

Results: Four major themes emerged: influencing factors, current approaches used, staff experiences, and strategies to improve breaking bad news. There was a need for better management of patients’ and families’ expectations. Breaking bad news was seen as emotionally demanding yet often unrecognized work.

Conclusions: Breaking bad news in the neurorehabilitation setting is complex and under-recognized work, involving multiple health professionals. There is a need for both experience and training to improve skills and confidence in breaking bad news.

Implications for Rehabilitation

• Existing tools to support breaking bad news provide a structured step by step approach which may be helpful, but it is recognised there is also a need for experience, reflection, flexibility, and individualisation of the process.

• Discussing information about rehabilitation potential may be stressful for health professionals themselves and adversely affect their own well-being.

• Both novice and experienced staff require opportunities for reflective practice and training to develop the skills they need to discuss rehabilitation potential.

Keywords:

• Multidisciplinary team
• communication
• neurology
• neurorehabilitation
• expectation management

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Funding

Rosemary Peel was supported by a clinical academic internship through Health Education England. Josephine Gibson is partly funded by National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care, North West Coast.