Work after stroke: focusing on barriers and enablers

Abstract

Previous research on work after stroke has used quantitative methods and a medical model approach to identify factors that influence return to work. This study uses an inclusive, qualitative methodology (focus groups) to begin to explore stroke survivors’ own perspectives about what helps and hinders paid or voluntary work after stroke. The research was conducted in partnership with Different Strokes, a British organisation of stroke survivors. Five focus group discussions were held with 37 stroke survivors and 12 of their supporters. Data was analysed using an adapted Framework approach to identify themes within and across individuals and groups. Factors representing barriers to or enablers of work were identified in four key themes: rehabilitation process, employer agency, social structural and personal. The study found evidence of social oppression via infrastructure, institutional structures and practices, and some individuals’ attitudes. Alongside this, some supportive individuals, practices and strategies were identified.

Acknowledgements

This research was funded by the Community Fund (formerly National Lottery Charities Board). The authors would like to acknowledge Different Strokes group coordinators, stroke survivors and their partners who participated in the focus groups; Donal O’Kelly, Eileen Gambrell and Amanda Crawford of Different Strokes; the Work After Stroke project Advisory Group and, for his advice about focus groups, Nick McNally of University College London Hospital NHS Trust.

Notes

* Corresponding author. School of Health and Social Sciences, Middlesex University, Queensway, Enfield, Middlesex EN3 4SA, UK. Email: [email protected]

Additional information

Notes on contributors

Lesley Jordan *

* Corresponding author. School of Health and Social Sciences, Middlesex University, Queensway, Enfield, Middlesex EN3 4SA, UK. Email: [email protected]