Comparing Opinions of People with Developmental Disabilities and Significant Persons in their Lives Using the Individual Supports Identification System (ISIS)

Abstract

Fifty-two people with developmental disabilities were interviewed using the Individual Supports Identification System (ISIS). This study reports on persons with developmental disabilities, served by the State of Washington Division of Developmental Disabilities, and includes persons whose onset of disability was prior to 18. To be eligible for services, an individual must have a disability that falls within one of the following categories: (1) mental retardation; (2) cerebral palsy; (3) epilepsy; (4) autism; and (5) other types of central nervous system impairment closely related to mental retardation. Interviews were conducted with two groups. The first comprised individuals with developmental disabilities and the second, significant persons in the life of each participant in the first group. A significant person was considered to be someone known by the individual with disabilities for more than 6 months, spending more time with him or her than others. In addition, the significant person must like the individual with disabilities, and have his or her best interests in mind. Seventy-five per cent of significant persons interviewed were parents. Significant persons also responded to a series of ISIS questions. Responses from the individual with disabilities and from the significant person in his or her life were compared in order to determine similarities and differences in perspective. Comparisons focus on issues pertaining to friends and relationships, living environment and daily care needs.