Bereavement support: From the poor cousin of palliative care to a core asset of compassionate communities

Abstract

The negative consequences of bereavement and the disruption of social relationships put the impact of bereavement squarely into a public health perspective. Adopting and strengthening a Compassionate Communities approach is necessary, not only for end-of-life care for dying people but also for providing bereavement support. Many palliative care services continue to adopt an unhelpful standardised approach in offering bereavement support. So, who provides support to the bereaved? Who needs support and to what extent? Importantly, who is perceived by bereaved people to have offered them support and was it helpful?

Based on reported experiences of the bereaved in a national Australian survey, the majority of this support is provided in informal and other community settings by a range of people already involved in the everyday lives of those recently bereaved. A public health approach to bereavement care is needed to support ‘everyday assets’ in the community without over-reach from professional services. Findings provided empirical evidence for building a community’s capacity to provide the type of social and practical support advocated by the Compassionate Communities approach. This body of work, innovative in content, conceptual model and recruitment approach, challenged the existing bereavement support structure and provision and has influenced practice and policy.

Keywords:

• Bereavement support
• Public health model
• Compassionate communities
• Palliative care
• Social support
• Community development
• Family caregivers

Acknowledgement

Many thanks to Associate Professor Bruce Rumbold for commenting on a draft of this manuscript.

Disclaimer statement

Contributors None.

Conflicts on interest This paper is based on a keynote presentation by the author at the Public Health Palliative Care International Conference. Compassionate Communities in Action: Re-claiming Ageing, Dying and Grieving. The Blue Mountains, New South Wales, Australia,13-16 October 2019.

Ethics approval None.

ORCID

Samar M. Aoun http://orcid.org/0000-0002-4073-4805

Correction Statement

This article has been republished with minor changes. These changes do not impact the academic content of the article.

Additional information

Funding

This work was supported by The Australasian Cemeteries and Crematoria Association; WA Cancer and Palliative Care Network, WA Health Department.