Supporting Communication of Girls with Rett Syndrome and their Mothers in Storybook Reading

In this study mother-child storybook reading was explored as a context within which to support early symbolic communication of girls with Rett syndrome. Baseline measures of mother-daughter interaction were gathered as mothers read familiar and unfamiliar storybooks with their daughters. Then three experimental interventions were studied in the homes of four girls: (a) resting hand splints, (b) light tech augmentative communication systems such as voice-output devices and symbols, and (c) very basic parent training. Access to devices, symbols, and training increased the frequency of each of the four girls, labeling and symbolic communication during storybook reading. Parent training was particularly useful in increasing the percentage of appropriate switch use by three of the four girls. The study suggests that parents can provide substantial support to early communication development in girls with Rett syndrome, if they are provided with basic information and materials.