Autism in a Family in China: An investigation and ethical consideration of sibling issues

Abstract

Having a child with autism in China raises challenges for families. Some are similar to those of families in western countries, but others are unique. This study sought to understand one aspect—the dilemmas of having a second child in a country where having only one child is the norm, and where social welfare services are not developed. This study examined the experiences of one family from the time when the family were considering having a second child through to the time when the younger child was a teenager. The most salient issues were the changing perspectives on the sibling’s role, and the responsibility and future burden of the sibling due to this responsibility. We use three ethical theories as a framework for analysis. The data suggested several benefits of having a second child and the possibilities for promoting opportunities and well-being, and not just responsibility and worry, in the second child. Areas of future research to expand this study are considered.

Keywords:

• autism
• children
• China
• ethical theory
• ethics
• family
• international
• siblings

Acknowledgements

The findings reported here are based on research that was funded in part by a Hobart and William Smith Colleges faculty research grant. No restrictions have been imposed on free access to, or publication of, the research data. The content of this publication does not necessarily reflect the views or policies of Hobart and William Smith Colleges. Opinions reflect those of the authors and do not necessarily reflect those of the funding organisation. The authors had no financial or other conflicts of interest.