Characterizing the systems of support for families of children with disabilities: A review of the literature

ABSTRACT

During early childhood, children require major support that is tailored toward their specific needs. For children with disabilities, families play a crucial part in providing the needed services. However, families often lack the knowledge, resources, and skills that would help them in overcoming challenges that arise while raising a child with disability. Although much research has focused on defining the needs of families with children with disabilities and the impact of disability on the family system, many questions remain. A comprehensive perspective is needed to identify the types of support families provide to the child with a disability, the impact of providing that support on family members, the support systems that are available to families, and the impact of support on society. This review consolidates the empirical research to date on family support during early childhood and outlines areas of research that need further exploration.

KEYWORDS:

• Children
• disabilities
• family support

Funding

S. Vanegas was supported by the Illinois LEND, Health Resources and Services Administration (HRSA), Department of Health and Human Services (DHHS) Grant (T73MC11047, PI Acharya). Work on this manuscript was supported by the Family Support Research and Training Center at the University of Illinois at Chicago (Magaña PI, NIDILRR 90RT50320-01-00).

Additional information

Funding

S. Vanegas was supported by the Illinois LEND, Health Resources and Services Administration (HRSA), Department of Health and Human Services (DHHS) Grant (T73MC11047, PI Acharya).