Designing Normative Messages About Active Surveillance for Men With Localized Prostate Cancer

Abstract

Active surveillance is increasingly recognized as a reasonable option for men with low-risk, localized prostate cancer, yet few men who might benefit from conservative management receive it. The authors examined the acceptability of normative messages about active surveillance as a management option for patients with low-risk prostate cancer. Men with a diagnosis of localized prostate cancer who were recruited through prostate cancer support organizations completed a web-based survey (N = 331). They rated messages about active surveillance for believability, accuracy, and importance for men to hear when making treatment decisions. The message “You don't have to panic … you have time to think about your options” was perceived as believable, accurate, and important by more than 80% of the survivors. In contrast, messages about trust in the active surveillance protocol and “knowing in plenty of time” if treatment is needed were rated as accurate by only about 36% of respondents. For active surveillance to be viewed as a reasonable alternative, men will need reassurance that following an active surveillance protocol is likely to allow time for curative treatment if the cancer progresses.

Acknowledgments

The authors acknowledge the support of Michael Worley and Jennifer Gatilao for editing the article, and Djenaba A. Joseph, MD, MPH, for programmatic support. Dr. Volk had full access to all study data and takes responsibility for its integrity and the accuracy of the data analysis.