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Articles

Barriers and characteristics for successful transition to adult healthcare for individuals with cerebral palsy: a systematic review

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Pages 195-207 | Received 27 Jun 2019, Accepted 29 Aug 2019, Published online: 29 Sep 2019
 

Abstract

Background: Cerebral palsy (CP) is a common childhood disability. However, these individuals are now living longer lives, participating in adult roles, and seeking healthcare services. The transition from pediatric to adult healthcare for adolescents with CP is a challenging yet significant time. Adolescents experience several barriers during transition.

Objectives: To utilize the environmental and personal dimensions of the ICF model in order to explore barriers when transitioning to adulthood as well as discuss characteristics and physical therapy implications needed to succeed within transition.

Methods: Electronic searching of PubMed, CINAHL, ERIC, Scopus, ProQuest, and the Cochrane Library databases was concluded on January 9, 2019 for studies including transition between pediatric and adult healthcare in individuals diagnosed with CP. Two independent reviewers agreed upon inclusion, eligibility, and quality assessment of each study using the Mixed-Methods Appraisal Tool (MMAT).

Results: Seven studies were included in the systematic review. Results for each study were separated based on the personal and environmental contextual factors of the ICF model and solutions to the barriers were then discussed.

Conclusions: Research has provided proposed solutions to select barriers, however, other barriers have yet to be addressed. More research is needed to address these barriers and provide a model program that can be implemented within the healthcare systems to promote a successful transition for adolescents with CP from pediatric to adult services.

Acknowledgements

The authors would like to thank Dr. Mark Wilhelm and Dr. Leigh Murray for their contributions.

Disclosure statement

No potential conflict of interest was reported by the authors.

Data availability statement

The authors confirm that the data supporting the findings of this study are available within the article and its supplementary materials.

Additional information

Notes on contributors

Hannah Lilly

Biographical Notes: Hannah is third year physical therapy student at Walsh University. She completed her undergraduate degree at Ashland University with a Bachelor’s of Science Degree in Athletic Training. Mackenzie is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Exercise Science. Tatiana is third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Biology. Joanna is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Youngstown State University with a Bachelor’s of Science Degree in Biology with minors in Chemistry and Psychology.

Mackenzie Bitzel

Biographical Notes: Hannah is third year physical therapy student at Walsh University. She completed her undergraduate degree at Ashland University with a Bachelor’s of Science Degree in Athletic Training. Mackenzie is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Exercise Science. Tatiana is third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Biology. Joanna is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Youngstown State University with a Bachelor’s of Science Degree in Biology with minors in Chemistry and Psychology.

Tatiana Pejnovic

Biographical Notes: Hannah is third year physical therapy student at Walsh University. She completed her undergraduate degree at Ashland University with a Bachelor’s of Science Degree in Athletic Training. Mackenzie is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Exercise Science. Tatiana is third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Biology. Joanna is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Youngstown State University with a Bachelor’s of Science Degree in Biology with minors in Chemistry and Psychology.

Joanna Schnell

Biographical Notes: Hannah is third year physical therapy student at Walsh University. She completed her undergraduate degree at Ashland University with a Bachelor’s of Science Degree in Athletic Training. Mackenzie is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Exercise Science. Tatiana is third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Biology. Joanna is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Youngstown State University with a Bachelor’s of Science Degree in Biology with minors in Chemistry and Psychology.

Antonette Doty

Biographical Notes: Hannah is third year physical therapy student at Walsh University. She completed her undergraduate degree at Ashland University with a Bachelor’s of Science Degree in Athletic Training. Mackenzie is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Exercise Science. Tatiana is third year physical therapy student at Walsh University. She completed her undergraduate degree at Walsh University with a Bachelor’s of Science Degree in Biology. Joanna is a third year physical therapy student at Walsh University. She completed her undergraduate degree at Youngstown State University with a Bachelor’s of Science Degree in Biology with minors in Chemistry and Psychology.

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