Ethical Considerations in the Use of Direct-to-Consumer Genetic Testing for Adopted Persons

Abstract

The use of DTC genetic testing to identify health risks is increasingly popular. This is particularly the case for adopted persons, who often lack access to family health history information and who may see genetic testing as the best (and only) way to identify potential inherited disease risks. However, the development of genetic testing to fill gaps in family health history information for adopted persons has been hindered by several challenges including ethical concerns surrounding appropriate uses of biotechnology and its application to medicine and public health. Here, we will approach these concerns in the context of the “Four Principles Approach” articulated by Beauchamp and Childress. Through this approach, it is our aim to illustrate the need for careful consideration of often neglected risks and benefits before adoptees make the decision to engage genetic testing.

Keywords:

• Genetic testing
• adoptees
• ethical principles

Disclosure statement

The authors have no known conflict of interest to disclose.

Additional information

Funding

This work was funded by U.S. National Library of Medicine.