Disability and transition from state education to community life: next steps for parents

Abstract

In this paper we explore the experiences of mothers of young adults with Down syndrome as their daughters and sons transition from schooling to adult life. These transitions occurred in a society shaped by neo-liberal political reform that commenced in the mid-1980s. The hallmarks of education are now expressed in terms of national achievement standards, aligned with the goals of economic gain, and efficiency in government services. In this climate being called disabled is a bad thing. For the mothers participating in this research, the roles and tasks associated with disability created a map of expectation for themselves and their children. Speaking with authority and reclaiming control so as to undertake their role in the longer term was to be as much a part of the transition from school as were the changes experienced by their daughters and sons. The shortcomings identified through the mothers' narratives signal a need for clarity and cohesion in professional and support processes for their disabled family members. The position is offered that the potential of the secondary school as a place for school-linked service integration and support warrants consideration. Understanding the value and impact of outcomes this model brings for a wide range of vulnerable school leavers would enhance the efforts around individuals such as those whose transition is discussed in this article.

Keywords:

• disability
• education policy
• inclusive education
• politics of education
• social theory

Notes on Contributors

Rod Wills is a Senior Lecturer in Education Studies (Disability) at the School of Critical Studies in Education, Faculty of Education and Social Work, University of Auckland. He is affiliated with the Menzies Health Research Institute, Griffith University, Queensland.

Professor Lesley Chenoweth OA is Professor of Social Work at the School of Human Services and Social Work at Griffith University and is affiliated with the Menzies Health Research Institute, Griffith University, Queensland.

Dr Kathleen Ellem is a Lecturer in Social Work at the School of Public Health and Social Work, Queensland University of Technology.