Exploring the benefits of respite services to family caregivers: methodological issues and current findings

ABSTRACT

Objectives: There is growing emphasis on empirical validation of the efficacy of community-based services for older people and their families, but research on services such as respite care faces methodological challenges that have limited the growth of outcome studies. We identify problems associated with the usual research approaches for studying respite care, with the goal of stimulating use of novel and more appropriate research designs that can lead to improved studies of community-based services.

Method: Using the concept of research validity, we evaluate the methodological approaches in the current literature on respite services, including adult day services, in-home respite and overnight respite.

Results: Although randomized control trials (RCTs) are possible in community settings, validity is compromised by practical limitations of randomization and other problems. Quasi-experimental and interrupted time series designs offer comparable validity to RCTs and can be implemented effectively in community settings.

Conclusion: An emphasis on RCTs by funders and researchers is not supported by scientific evidence. Alternative designs can lead to development of a valid body of research on community services such as respite.

KEYWORDS:

• Respite
• adult day care
• quantitative methods
• caregiving

Acknowledgments

The research in this paper was supported in part by a grant R01 AG031758 ‘Daily Stress and Health Study’ (PI: Steven H. Zarit, PhD) from the National Institute of Aging.

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Funding

National Institute of Aging [Grant Number R01 AG031758].