Indicators to estimate the appropriateness of activating interventions for people living with dementia and for their informal caregivers

ABSTRACT

Objectives: Dyadic activating interventions support both people with dementia and their informal caregivers to maintain activities. For a person-centered approach referrers need insight in how specific interventions might meet individual needs, characteristics, and preferences of a dyad. This study aimed to develop a set of indicators for three psychosocial dyadic, activating interventions.

Method: We used the ‘RAND Appropriateness Method’ directed at agreement on indicators within a panel of experts. Qualitative research had identified 31 relevant conceptual indicators. A panel of 12 experts in dementia care rated the extent to which these indicators are recognizable in their clinical practice. Indicators with median ratings in the top third segment of the nine-point-scale were considered recognizable.

Results: 18/31 conceptual indicators (58%) were found recognizable in 75%–90% of the panelists’ clients. Although consensus on the recognizability of some indicators about the need or preference for physical and social activities was lacking, the respondents nevertheless recommended including these in regular assessments. Other indicators were judged too difficult to recognize in clinical practice.

Conclusion: The selected indicators offer guidance to referrers on what intervention(s) to choose, and discuss the appropriateness in a shared decision-making process, thus contributing to a person-centered approach.

KEYWORDS:

• Dementia
• caregivers
• intervention
• indicators
• person-centered care

Acknowledgments

We thank the participating experts for sharing their expertise and spending their valuable time. Rotterdam University of Applied Sciences financially supported the study.

Disclosure statement

No potential conflict of interest was reported by the authors.