The caregiver experience: a South African perspective on caring for people with multiple sclerosis

Abstract

This study explored the lived experiences of caregivers of people with multiple sclerosis (MS) with regard to their daily challenges, as well as the resources which help them to cope with their caregiving task. Participants were eight South African men (n = 3) and women (n = 5) [white = 6; coloured = 2] caring for a person with MS. They responded to a qualitative interview on their caregiving experiences. The data were thematically analysed. Findings suggest their daily challenges of managing symptoms, limited social interaction, financial difficulties, and the unpredictability of the future as a result of MS. Resources helpful to coping with caregiving roles include resilience, positive attitude, patience, religion, information, and financial security. Carer support should be tailor-made, because of the unique experiences of each caregiver and the varied presentation of MS.

Keywords:

• Caregiver
• thematic analysis
• resources
• support
• challenges
• multiple sclerosis

Acknowledgments

This work is based on the research supported by the National Research Foundation (NRF) of South Africa.

Disclaimer

Any opinion, finding and conclusion or recommendation expressed in this material is that of the author(s) and the NRF does not accept any liability in this regard.