Hysteresis – or the mismatch of expectations and possibilities among relatives in a transforming health care system.

ABSTRACT

When a person experiences a severe stroke, their relatives must assume the role of partners in the rehabilitation process. Drawing on Bourdieu’s field theory, we investigated the potential gap between the subjective expectations of relatives in terms of the assistance and care they can offer patients with severe brain injuries and the objective constraints of a healthcare field. Using data from observations, as well as interviews with relatives and official documents, our study shows how some relatives, reliant on their habitus, bring to their collaboration with healthcare professionals an expectation that the healthcare field will be able to take care of their multiple individual needs. However, due to hysteresis – a gap between their dispositions and the objective possibilities of the transformed healthcare field – these relatives are not equipped to recognise, grasp and occupy their new field position. We conclude that Bourdieu’s theoretical concept of hysteresis may help to understand how changes in the healthcare field may lead to a mismatch between the field and the habitus manifested in interactions between patients, relatives and healthcare professionals, so that the ill-adjusted habitus of relatives leads to missed chances in relation to the opportunities objectively offered by the field.

KEYWORDS:

• Relatives
• expectations
• stroke
• welfare system
• Bourdieu
• hysteresis

Acknowledgements

A special thank you goes to the patients, their families, and the health professionals who took the time and trouble to participate in this research. The study was funded by Aalborg University, Hammel Neurorehabilitation and Research Centre, and VIA University College, Denmark.

Disclosure statement

No potential conflict of interest was reported by the authors.

ORCID

Helle Roenn-Smidt http://orcid.org/0000-0003-2987-5540

Janet K. Shim http://orcid.org/0000-0002-4597-7961

Kristian Larsen http://orcid.org/0000-0001-6835-0814

Additional information

Funding

The study was funded by Aalborg University, Hammel Neurorehabilitation and Research Centre, and VIA University College, Denmark.