Exploring the experiences of teenagers with cochlear implants

Abstract

Objectives: Teenage cochlear implant users’ perceptions of deafness, surgery, fitting of the device and life as a cochlear implant wearer were explored in order to gain a more comprehensive understanding of teenagers’ experiences of living with the device.

Methods: Semi-structured in-depth interviews were undertaken and analysed using thematic analysis. Ten teenagers aged 14–16 years with at least one cochlear implant were interviewed.

Results: Seven teenagers experienced great pre-operative anxiety and two reported significant post-operative pain. Four of the teenagers described a mismatch between their expectations and the disappointing reality of adjusting to the device. However, all the teenagers reported an enhanced sense of well-being as a result of being able to interact more easily with their world around them. The teenagers differed in the extent to which they identified with the hearing and deaf world.

Discussion: Despite the early challenges, over time the teenagers experienced many functional and psychosocial benefits. Most felt their lives were now easier as a result of the cochlear implant(s). They described complex, flexible identities.

Conclusions: By giving prominence to the teenagers’ voices this study has added new knowledge concerning their experience of surgery. The findings also more fully revealed the challenges of adjusting to the device and the impact of having a cochlear implant on the teenagers’ identities. Clinical recommendations are made to address the gaps in service highlighted by these findings.

Keywords:

• Cochlear implant
• Teenager
• Experience
• Surgery
• Rehabilitation
• Deaf
• Identity

Acknowledgements

The authors would like to thank all of the teenagers who gave up their time to participate in this study.

Disclaimer statements

Contributors Victoria Watson: Author. Carl Verschuur and Judith Lathlean: Contributors.

Funding None.

Conflict of interest None.

Ethics approval Ethical approval was obtained from the National Research Ethics Committee (10/HO501/28), with additional approval from the University of Southampton. Permission to carry out interviews at the school for deaf children was granted by the school's research committee.

ORCID

Victoria Watson http://orcid.org/0000-0003-1474-2163