Psychological experiences of renal transplant patients: A qualitative analysis

Abstract

Introduction: Organ-sourcing developments now permit increasing numbers of renal transplants. Recipients commonly experience negative affect pre- and/or post-transplant yet research on patient experience is lacking. Aims: This study aims to develop theory based on the lived experience of recipients, and to guide psychological and support interventions by counsellors and professional carers for the benefit of patients. Methods: A sample of eight participants was interviewed about their transplant experiences. The interview data were analysed using grounded theory methodology. Uniquely the research was conducted by a renal transplant patient, which potentially adds interpretive insight. Results: The central finding is that the issues facing transplant patients before and after transplant may be summarised as living with paradox and conflict. Thus, recipients may need to juxtapose anger/sadness about losses with an adaptive attitude to making the most of a second chance at life, and negotiate a positive relationship with an ‘alien’ organ. Conclusions/implications: The study offers evidence-based guidance to counsellors supporting recipients to adjust to a changing sense of self, and to form adaptive relationships with self, others and the new kidney. Finally the research recommends action on improving awareness of and access to counselling and other supports for renal transplantees, and the need for in-depth experiential research in this expanding area.

Keywords:

• Experiential
• grounded theory
• paradox
• renal transplant

Acknowledgements

The authors thank all the transplant patients who took part in this study and Transplant Sports UK, who together made this research possible.